Post your Pic


#2821

Bob, you actually sort of look like your avatar only a bit older. General, I think you should grow that beard, dye your hair and beard and show us the result.


#2822

[quote=“patriciareed, post:2820, topic:154”]
just the opposite with my relatives, it seems the older they get, the more strikingly they resemble each other and their parents (who are mostly gone now in the case of my many cousins). I tried to post more than one pic last night but with my usual klutziness I could only get one to post, so will try to add others occasionally, one at a time
[/quote]I think what you’re talking about siblings resembling more as they get older is the norm. I have no idea why we’re upside down on this.

[quote=“patriciareed, post:2820, topic:154”]
you have a very good looking family!
[/quote]Thank you.

[quote=“patriciareed, post:2820, topic:154”]
I had a stroke in 2009, so I “walk funny.”
[/quote]Yikes!!! Which side? Any other symptoms?

[quote=“patriciareed, post:2820, topic:154”]
so it’s been an adjustment
[/quote]I know what you’re talking about. I haven’t had a stroke, but I have a severe motor neuron malfunction called “Ataxia” and I’m a close friend of the Minister of Funny Walks.

No steering, no brakes, and no reverse. My wife has to hold me to steer me when we go out. Was recently at a restaurant with some landscaping shrubs out front. She let go of me for a second, and I went off course right into the shrubs. Crashed and tumbled into them and they brought me to a stop.

Everything from the waist up seems to work, so at the moment I can drive. But if I ever get pulled over and they administer one of those “walk the line” drunk tests, I’m headed to the graybar hotel for being a “drunk”.

[quote=“patriciareed, post:2820, topic:154”]
I remember when roger bannister first broke the psychological barrier
[/quote]Yes, I remember that too. Was in the late 50’s or early 60’s, wasn’t it? Was a Medical School student or something like that, wasn’t he?

Guess I could Google it, but I’m testing my memory instead.

[quote=“patriciareed, post:2820, topic:154”]
not sure what you will think of this, but I think your bro Butch at least slightly resembles jstang!! (smile) or at least his avatar. hope neither you nor jstang will be offended. :smile:
[/quote]Y’know . . . you’re right. (The avatar, 'cause I think JStang is actually a chrome-dome . . . he has a pic somewhere in this thread.)

Butch and I get along and play “ain’t it awful” about BHO. But he is extremely vain . . . a $400 haircut kinda’ guy. I think I’ll tell him he’s not getting his money’s worth from his expensive stylist.

[quote=“patriciareed, post:2820, topic:154”]
btw if you still have that wonderful hopalong outfit, that bald guy (cant think of his name) on Pawn Stars might pay a lot for it. I means, he would try t get it for nothing, but…
[/quote]I know who you’re talking about on Pawn Stars . . . “Rick” I think it is.

No, that hopalong outfit is long gone, but I DO remember it, and actually standing for that photo. Good idea though.


#2823

[quote=“Rightwing_Nutjob, post:2821, topic:154”]
Bob, you actually sort of look like your avatar only a bit older. General, I think you should grow that beard, dye your hair and beard and show us the result.
[/quote]Y’know . . . I never noticed that 'till you pointed it out. May do what you suggest just for the fun of it.

Guess I know what my outfit’s gonna’ be for next Halloween.


#2824

hope you dont mind me asking, but how long have you had this neuron malfunction and do they know the cause?

my primary care physician says he is not one hundred per cent sure that my walking problems are one hundred percent from the stroke. it’s very confusing. cuz i was starting to have off and on spells of having trouble walking for a about a year before the stroke. the way i described it was “my feet dont always do what i tell them to do.”

but no question, that off and on problem became completely on after jan 26, 2009 (i will never forget the date) when i had a lacunar infarct in the pontine area of the brain. that was perfectly clear on the mri. that type of stroke according to the neurologist is not one side or the other. in my case, it was, as with your problem, bilateral from the waist down, fine from the waist up. the neurologist said, “strokes in the pontine area generally affect balance and coordination. but sometimes they affect other things too. you are doing much better than i expected. you are very very lucky.” thanks doc… i think…holy sheep

but then i caused a big argument amongst our local medical community (gosh i love to do that) because the “white matter” part of my brain–different area than where i had the stroke, was also abnormal–it looked like i had ms. so all the docs agreed i had a stroke, but some said i also had ms, and some said i didnt. in the end the “no ms” side won. but we really dont know for sure.:confused:

arent you glad you asked?!


#2825

[ATTACH]2041[/ATTACH][ATTACH]2042[/ATTACH][ATTACH]2043[/ATTACH] i maybe should have put these pics in the “snow and lots of it” thread, but here they be.

the top one, taken in feb by a professional photographer, is one of the snow statues that the Michigan Tech Univeristy students create for their winter carnival every yr. this scene depicts the cinderella fairy tale. the caption (written in snow) reads, “within houghton’s frigid snow and ice, we see a love story come to life. Cinderella frozen in time, just before the midnight chime.”

the middle pic was taken by a friend of her apt door. she calls the pic “heads up!” and one can see why. taken in feb also i believe.

the bottom pic was taken i think in november? and I call it “moonrise over downtown houghton michigan.” taken from my apt balcony by a friend with her iphone which sends pics to other phones but not to computers, no idea why. my bro in neb has an iphone that accepts pics from other iphones and a computer that will accept pics from his iphone, so my friend here sent the pic to my bro’s iphone, he sent it from his iphone to his computer, and then from his computer to my computer. moral: try to get along with people you sometimes disagree with, because you never know when you may need them to be a link in a digital chain!! :yes:


#2826

[quote=“patriciareed, post:2824, topic:154”]
hope you dont mind me asking, but how long have you had this neuron malfunction and do they know the cause?
[/quote]I don’t want to carry this too far off from “pics”, but I’ll answer here. However, if you have follow-up questions to this, you might PM me so we don’t drift any more here.

Not “scolding” you or any thing like that, I just don’t want too see our exchange here taking this south. I’d be more than happy to answer any other questions via PM. I’ve learned more about this curse than I’d like to, so would certainly be willing to share it all with you.

OK, I’ve had this aggravation (understatement) since about 1999.

I was diagnosed by a neurologist with “Idiopathic Ataxia” (which means “Ataxia of unknown origin” . . . “Ataxia” is a greek word meaning “lack of coordination” . . . there are well over 20 different types of ataxia, but it’s very rare . . . something like less than 0.0001% of the population.)

I had all kinds of tests, some at the Mayo Clinic down in Phoenix. CT Scans, MRI’s, P.E.T. Scans, blood tests, nerve conduction tests, etc. You name the test, and I’ve had it.

All kinds of barbaric and primitive poking and prodding. All kinds of diagnostic “procedures” (I think “procedure” is the Medical euphemism for . . . TORTURE).

And after it all, the neuro specialists at Mayo said, “Well, the good news is that you don’t have brain cancer or any malignancy, you don’t have muscular dystrophy, you don’t have cerebral palsy, you don’t have NPH (“Water on the Brain”). you don’t have multiple sclerosis, and you don’t have Parkinson’s.

The bad news is . . . we don’t know what the heck you have, but you sure do walk funny.

Well . . . they didn’t put it quite that way, but that was the distillation. Thus “Ataxia of unknown origin”.

One specialist said I was deficient in Vitamin E . . . Natural Vitamin E. The synthetic version you get over the counter is a stereo isomer of what you get from food, and is not as efficient as the “natural” kind.

Raw Spinach, almonds, and wheat germ is high in natural Vitamin E. So for six months I ate nothing but Spinach salads with wheat germ and almonds for breakfast, lunch, and dinner (a little bit of an exaggeration, but not too much.) It got worse during that time. So that was another quack whose fancy sports car I financed.

Another guy said I had “Glutin Ataxia”. So for a few years I went on a glutin free diet. I don’t know if you’re familiar with that type of diet, but it’s very strict, tedious, difficult, AND EXPENSIVE. In the two years I was on it, my burden got worse. Yet another quack.

I finally got tired of financing the doctors summer vacations to Switzerland and being their perpetual research project, so I quit going to them but keep abreast of developments, go to a local neuro about every six months, and participate on several Ataxia forums.

And even if they told me they had figured out what caused it. So what? There is no cure or treatment anyway. Useless information!!

[quote=“patriciareed, post:2824, topic:154”]
the way i described it was “my feet dont always do what i tell them to do.”
[/quote]That’s EXACTLY how I would describe MY symptoms.


#2827

Quote Originally Posted by patriciareed
the way i described it was “my feet dont always do what i tell them to do.”

That describes a friend of mine whose back surgery was botched by the docs at Duke University. She is a quad, (actually a “tri” because she can use one arm & hand), but she has been trying for years (I don’t know how she is doing now) to learn to walk. Her actual problem is a little different, though - she has no sense of where her feet are unless she looks at them.


#2828

[quote=“Susanna, post:2827, topic:154”]
That describes a friend of mine whose back surgery was botched by the docs at Duke University. She is a quad, (actually a “tri” because she can use one arm & hand), but she has been trying for years (I don’t know how she is doing now) to learn to walk. Her actual problem is a little different, though - she has no sense of where her feet are unless she looks at them.
[/quote]what a puzzle! hard for a lay person to sort this out, even if you are the lay person and are directly affected. I certainly have sensation in my feet, at times quite a bit of sensation–but also times when I would describe my feet as “blocks of wood.” I guess bj and I are lucky that we can walk, and also that we’re unaffected from the waist up.

yikes, if they can botch surgery at duke, they can botch surgery anywhere.


#2829

They botched because they didn’t look at all her records before performing the surgery. They were just too anxious for the dollars. Her husband has made such a stink about it (there was - perhaps still is - a gag order on all Duke employees about it) that one doctor at Duke has fled the state.

They wouldn’t even let her husband see her for three days, and when he didn’t they hadn’t been feeding her or anything; they had dumped the colostomy bag in a bucket and left the bucket set there. They were giving her next to no care, perhaps hoping they could leave her to die. Sure sounded like that to me.


#2830

[quote=“Susanna, post:2829, topic:154”]
They botched because they didn’t look at all her records before performing the surgery. They were just too anxious for the dollars. Her husband has made such a stink about it (there was - perhaps still is - a gag order on all Duke employees about it) that one doctor at Duke has fled the state.

They wouldn’t even let her husband see her for three days, and when he didn’t they hadn’t been feeding her or anything; they had dumped the colostomy bag in a bucket and left the bucket set there. They were giving her next to no care, perhaps hoping they could leave her to die. Sure sounded like that to me.
[/quote] that is a truly shocking series of events. a real horror story. I wouldn’t have expected that at a place like duke. how can they not let the spouse see a patient? how can they put a gag order on employees? what is happening to this country?


#2831

From what I understand, that is typically Duke.


#2832

[quote=“Susanna, post:2831, topic:154”]
From what I understand, that is typically Duke.
[/quote] appalling. such a lack of accountability. apparently potential whistleblowers are being effectively intimidated.


#2833

My friend’s surgery was for spina bifida. Her husband thought Duke would have great facilities and knowledge to deal with that. He also made the mistake of assuring them that he had plenty of insurance to cover everything.


#2834

[quote=“Susanna, post:2833, topic:154”]
My friend’s surgery was for spina bifida. Her husband thought Duke would have great facilities and knowledge to deal with that. He also made the mistake of assuring them that he had plenty of insurance to cover everything.
[/quote]there’s a special place in hell reserved for corrupt medical professionals.


#2835

Dear friends having been here in North Carolina for almost 35 years, and knowing many of the hospital systems, Duke is nowhere that bad and in many ways quite advanced along with other major university hospitals in Wake Forest System, UNC System, and they all are perfectly fine. My son’s fiancée is getting her Masters from Duke hospital Nursing program next month. Are there glitches, sure as with any huge hospital program. But let’s use a far smaller brush.


#2836

Well, my friend and his wife have a lot of experience with Duke, and dealing with her case, have found out an awful lot. I take his word for it.


#2837

[quote=“njc17, post:2835, topic:154”]
Dear friends having been here in North Carolina for almost 35 years, and knowing many of the hospital systems, Duke is nowhere that bad and in many ways quite advanced along with other major university hospitals in Wake Forest System, UNC System, and they all are perfectly fine. My son’s fiancée is getting her Masters from Duke hospital Nursing program next month. Are there glitches, sure as with any huge hospital program. But let’s use a far smaller brush.
[/quote] true, but this sounds like more than a glitch. it sounds like a series of strange and dismaying events that could only happen if there’s a powerful someone in one part of the duke program–not condemning the whole program-- but sounds like there’s a very smelly room somewhere in the departmental edifice that is badly in need of cleaning out.


#2838

Awwwww…how sweet, Bobjam! I like your shirt! And your wife is lovely…no matter where her hand is! :freaked: I thought I posted a picture of me with my nephew and brother-in-law somewhere. I think it was on the thread where I put all you guys with funny pictures. Don’t remember where that was…


#2839

http://i1348.photobucket.com/albums/p723/SexySadie/Family/LaFamiliaCropped_zpsf501dfc2.jpg

This was taken 2 years ago. My hair is back to its natural color–grey with a little light brown in it. Otherwise, I look the same.


#2840

You look like you have a sweet voice CT. :slight_smile: Who are the men in the photo with you?